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Table 1 Living participants by re-contact status and consent

From: Re-contacting participants for inclusion in the database of Genotypes and Phenotypes (dbGaP): Findings from three case-control studies of lung cancer

 

Contacteda(n = 1,820)

Status of consentb(n = 871)

 

Yes

No

p-value

Given

Refused

p-value

Study

  

<0.0001

  

0.76

  FHS

138 (48.6%)

146 (51.4%)

 

98 (90.7%)

10 (9.3%)

 

  WELD

551 (73.3%)

201 (26.7%)

 

423 (88.7%)

54 (11.3%)

 

  INHALE

456 (58.2%)

328 (41.8%)

 

252 (88.1%)

34 (11.9%)

 

Sex

  

<0.0001

  

0.05

  Male

238 (48.5%)

253 (51.5%)

 

122 (84.1%)

23 (15.9%)

 

  Female

907 (68.3%)

422 (31.7%)

 

651 (89.7%)

75 (10.3%)

 

Age (years)

  

<0.0001

  

0.07

  <49

229 (51.0%)

220 (49.0%)

 

163 (92.6%)

13 (7.4%)

 

  50+

916 (66.8%)

455 (33.2%)

 

610 (87.8%)

85 (12.2%)

 

Race

  

<0.0001

  

0.43

  White

578 (72.2%)

223 (27.8%)

 

448 (89.8%)

51 (10.2%)

 

  Black

550 (55.6%)

439 (44.4%)

 

312 (87.2%)

46 (12.9%)

 

  Other

17 (56.7%)

13 (43.3%)

 

13 (92.9%)

1 (7.1%)

 

Status

  

0.0009

  

0.48

  Case

362 (68.8%)

164 (31.2%)

 

248 (89.9%)

28 (10.1%)

 

  Control

783 (60.5%)

511 (39.5%)

 

525 (88.2%)

70 (11.8%)

 
  1. aExcludes 13 people for whom contact status was unclear/still pending.
  2. bExcludes 274 people who were successfully contacted and verbally agreed but never sent back the form (n = 252), individuals who were contacted but too sick to give informed consent (n = 30), and n = 2 individuals who were deceased but had next of kin return a consent form.
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Genome Medicine

ISSN: 1756-994X

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