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PY - 2010 DA - 2010// TI - Informed consent in genomics and genetic research JO - Annu Rev Genomics Hum Genet VL - 11 UR - https://doi.org/10.1146/annurev-genom-082509-141711 DO - 10.1146/annurev-genom-082509-141711 ID - McGuire2010 ER - TY - JOUR AU - O'Doherty, K. C. AU - Burgess, M. M. AU - Edwards, K. AU - Gallagher, R. P. AU - Hawkins, A. K. AU - Kaye, J. AU - McCaffrey, V. AU - Winickoff, D. E. PY - 2011 DA - 2011// TI - From consent to institutions: designing adaptive governance for genomic biobanks JO - Soc Sci Med VL - 73 UR - https://doi.org/10.1016/j.socscimed.2011.05.046 DO - 10.1016/j.socscimed.2011.05.046 ID - O'Doherty2011 ER - TY - JOUR AU - Wolf, S. M. AU - Crock, B. N. AU - Ness, B. V. AU - Lawrenz, F. AU - Kahn, J. P. AU - Beskow, L. M. AU - Cho, M. K. AU - Christman, M. F. AU - Green, R. C. AU - Hall, R. AU - Illes, J. AU - Keane, M. AU - Knoppers, B. M. AU - Koenig, B. A. AU - Kohane, I. S. AU - LeRoy, B. AU - Maschke, K. J. AU - McGeveran, W. AU - Ossorio, P. 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PY - 2011 DA - 2011// TI - Two large-scale surveys on community attitudes toward an opt-out biobank JO - Am J Med Genet A VL - 155A UR - https://doi.org/10.1002/ajmg.a.34304 DO - 10.1002/ajmg.a.34304 ID - Brothers2011 ER - TY - CHAP AU - Cadigan, R. J. AU - Davis, A. M. ED - Kaye, J. ED - Stranger, M. PY - 2009 DA - 2009// TI - Deciding whether to participate in a biobank: the concerns of healthy volunteers BT - Principles and Practice in Biobank Governance PB - Ashgate Publishing Ltd. CY - Burlington, VT ID - Cadigan2009 ER - TY - JOUR AU - Caulfield, T. AU - Rachul, C. AU - Nelson, E. PY - 2012 DA - 2012// TI - Biobanking, consent, and control: a survey of Albertans on key research ethics issues JO - Biopreservation and Biobanking VL - 10 UR - https://doi.org/10.1089/bio.2012.0029 DO - 10.1089/bio.2012.0029 ID - Caulfield2012 ER - TY - JOUR AU - Dressler, L. G. AU - Smolek, S. AU - Ponsaran, R. AU - Markey, J. M. AU - Starks, H. AU - Gerson, N. AU - Lewis, S. AU - Press, N. 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