Table 1 List of HUGO Statements
From: The Human Genome Organisation: towards next-generation ethics
HUGO Ethics Committee (now called the Committee on Ethics, Law and Society) | |
|---|---|
1995/6 | Statement on the Principled Conduct of Genetics Research [3] |
1998 | Statement on DNA Sampling: Control and Access [3] |
1999 | Statement on Cloning [3] |
2000 | Statement on Benefit-Sharing [3] |
2001 | Statement on Gene Therapy Research [3] |
2002 | Statement on Human Genomic Databases [3] |
2004 | Statement on Stem Cells [3] |
2007 | Statement on Pharmacogenomics (PGx): Solidarity, Equity, and Governance [4] |
2013 | Imagined Futures: Capturing the Benefits of Genome Sequencing for Society (unpublished) |
HUGO Intellectual Property Committee | |
1995 | HUGO Statement on the Patenting of DNA Sequences [7] |
1997 | Statement on Patenting Issues Related to Early Release of Raw Sequence Data [4] |
2000 | Statement on Patenting of DNA Sequences in Particular Response to the European Biotechnology Directive [4] |
2003 | Statement on the Scope of Gene Patents Research Exemption, and Licensing of Patented Gene Sequences for Diagnostics [4] |