From: Associations between self-referral and health behavior responses to genetic risk information
Classification | Description | n |
---|---|---|
Self-referred participants (n = 546) | ||
Brochure or advertisement | Participants saw recruitment brochures that study staff left in neurology clinic waiting rooms and related locations or responded to newspaper advertisements or flyers about the study | 233 |
Media* | Participants read about the study in a newsletter, newspaper article or book | 91 |
Web site* | Participants (a) found a website created at one of the participating study sites; (b) visited a news or entertainment website that was discussing the REVEAL study; (c) found study details on a website that helped studies enrol participants (for example, ClinicalTrials.gov); or (d) said they had learned about the study ‘online,’ ‘on the internet,’ or through a ‘Google search’ without being more specific | 64 |
Study presentation | Participants attended a community event to raise awareness about AD where study personnel presented | 49 |
Friend | Participants learned about the study from acquaintances who were already participating or heard about the study in the media | 49 |
Acquaintance* | Participants mentioned a specific individual who told them about the REVEAL study | 37 |
Health fair* | Participants approached a booth at a local health fair set up by Howard University | 10 |
Wait list* | Boston University waitlisted individuals who had wanted to participate in the first REVEAL study trial | 10 |
Self-referred* | Study personnel labeled participants as ‘self-referred’ without elaboration | 3 |
Actively recruited participants (n = 249) |  | |
Another research study | Researchers specializing in neurology and AD discussed the REVEAL study with patients enrolled in a separate study | 149 |
Called at home or work | Study personnel called individuals who provided contact information for research purposes, usually through membership in a research registry | 35 |
Provider referral* | A nurse, physician, or genetic counselor referred the participant to the study | 25 |
Mailing* | Participants received mailings because they (a) had relatives who participated in the AD Anti-Inflammatory Prevention Trial (ADAPT), (b) were members of the Michigan AD Research Center registry, or (c) were members of the Michigan Dementia Coalition | 15 |
Clinic intake* | Howard University personnel classified individuals they had approached at neurology clinics this way | 12 |
Alzheimer’s Disease Center (ADC) referral* | The Boston University ADC referred individuals to the REVEAL study who (a) wanted to participate in another study that was already closed or for which they did not qualify, or (b) accompanied AD-affected relatives to ADC appointments for another study | 7 |
Approached in the waiting room | REVEAL study personnel approached families in waiting areas of neurology and geriatrics clinics | 6 |