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Table 1 Characteristics of participants with completed post-disclosure or catch-up surveys in the PeopleSeq Consortium (n = 543)

From: Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium

Characteristic No. (%)a
Age, mean (± SD; range), years 53.0 (12.8; 22–91)
Gender
 Female 202 (38.0)
 Male 326 (61.4)
 Other 3 (0.6)
Race
 African American or Black 3 (0.6)
 Asian 15 (2.8)
 White 485 (91.7)
 More than one race or other race 26 (4.9)
Hispanic or Latino 16 (3.0)
Education
 Less than college degree 24 (4.5)
 College degree 67 (12.7)
 Some graduate school 160 (30.3)
 Doctoral or professional degree 278 (52.6)
Annual income
 < $40,000 36 (7.0)
 $40,000–$99,999 82 (15.9)
 ≥ $100,000 397 (77.1)
Marital status
 Married 383 (72.0)
 Widowed, divorced, or separated 71 (13.4)
 Never married 78 (14.7)
Biological children 370 (69.6)
US resident 469 (88.3)
Self-reported health
 Excellent 167 (35.2)
 Very good 210 (44.3)
 Good 78 (16.5)
 Fair 18 (3.8)
 Poor 1 (0.2)
Prior genetic testing 247 (49.8)
Project
 Illumina’s Understand Your Genome 329 (60.6)
 The Harvard Personal Genome Project 167 (30.8)
 Baylor Young Presidents’ Organization and MD/PhD Genome Projects 28 (5.2)
 Mount Sinai’s HealthSeq project 19 (3.5)
  1. SD standard deviation
  2. aPercentages may not sum to 100 due to rounding. Percentages and means are not all based on total of 543 participants because of missing responses to some survey items. The percent of missing responses ranges between 0 and 12.7% (median = 2.4% missing)