Table 1 Characteristics of participants with completed post-disclosure or catch-up surveys in the PeopleSeq Consortium (n = 543)
Characteristic | No. (%)a |
|---|---|
Age, mean (± SD; range), years | 53.0 (12.8; 22–91) |
Gender | |
 Female | 202 (38.0) |
 Male | 326 (61.4) |
 Other | 3 (0.6) |
Race | |
 African American or Black | 3 (0.6) |
 Asian | 15 (2.8) |
 White | 485 (91.7) |
 More than one race or other race | 26 (4.9) |
Hispanic or Latino | 16 (3.0) |
Education | |
 Less than college degree | 24 (4.5) |
 College degree | 67 (12.7) |
 Some graduate school | 160 (30.3) |
 Doctoral or professional degree | 278 (52.6) |
Annual income | |
 < $40,000 | 36 (7.0) |
 $40,000–$99,999 | 82 (15.9) |
 ≥ $100,000 | 397 (77.1) |
Marital status | |
 Married | 383 (72.0) |
 Widowed, divorced, or separated | 71 (13.4) |
 Never married | 78 (14.7) |
Biological children | 370 (69.6) |
US resident | 469 (88.3) |
Self-reported health | |
 Excellent | 167 (35.2) |
 Very good | 210 (44.3) |
 Good | 78 (16.5) |
 Fair | 18 (3.8) |
 Poor | 1 (0.2) |
Prior genetic testing | 247 (49.8) |
Project | |
 Illumina’s Understand Your Genome | 329 (60.6) |
 The Harvard Personal Genome Project | 167 (30.8) |
 Baylor Young Presidents’ Organization and MD/PhD Genome Projects | 28 (5.2) |
 Mount Sinai’s HealthSeq project | 19 (3.5) |