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Table 2 Reported responses following disclosure of genome sequencing results

From: Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium

 

No. (%)a

Psychological response

 Decision regret score, mean (± SD; range)b

6.6 (13.4; 0–100)

Behavioral and medical responses because of sequencing results

 Communication of test results

  Family

399 (81.1)

  Healthcare provider

252 (51.2)

Made appointment with healthcare provider

65 (13.5)

Sought out more information about health or medical topics related to results

237 (48.5)

Made changes to diet

45 (9.4)

Made changes to exercise routine

41 (8.6)

Made changes to medications

29 (7.2)

Made changes to insurance coverage

2 (0.4)

  1. SD standard deviation
  2. aPercentages and means are not all based on total of 543 participants because of missing responses to some survey items. The percent of missing responses ranges between 8.7 and 25.8% (median = 11.0% missing)
  3. b5-item decision regret scale provides a score from 0 to 100