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Table 2 Percentage of participants endorsing each measure proposed to help to trust recipients of donated DNA/medical information, overall and by country

From: Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

Measure Overall Argentina Australia Belgium Brazil Canada China Egypt France Germany India Italy Japan Mexico Pakistan Poland Portugal Russia Spain Sweden Switzerland UK USA
Transparent information about WHO will benefit from the data access 61 74 68 58 69 63 32 75 59 57 61 66 55 68 61 63 73 47 68 66 70 67 62
The option to withdraw your information in the future 54 58 67 56 50 62 39 31 57 50 46 48 55 60 51 58 59 49 58 53 62 61 51
Knowing exactly who is using your information, and for what purpose 53 56 61 61 52 56 46 45 53 63 40 45 56 57 47 52 60 62 52 53 63 53 45
Transparent information about HOW others will benefit personally, professionally and commercially from the data access 49 57 62 35 51 54 38 52 41 37 56 52 42 59 45 41 61 36 55 54 42 55 53
The option to opt out of having your information accessed by other researchers 45 33 60 44 45 54 51 34 45 30 42 34 37 38 44 52 51 37 37 25 49 53 44
Details about the sanctions applicable if my data is misused by others 40 48 49 37 36 42 28 44 36 43 5 29 58 45 22 38 49 50 37 36 42 41 29
The ability to access your own DNA and/or medical information 38 40 53 51 24 47 31 28 43 37 27 30 28 46 27 45 43 52 40 43 48 42 41
A website that clearly explains the pros and cons of data access 37 38 49 32 35 40 38 38 28 29 56 29 36 35 42 31 27 28 29 30 33 46 49
Being able to communicate directly with gatekeepers of my DNA and/or medical information 27 30 37 29 30 32 24 32 28 28 13 16 17 30 29 28 35 36 29 22 28 29 26
Biographies and photos of the sorts of researchers who would access the data 21 21 17 14 21 20 34 28 19 15 31 13 24 28 23 17 16 20 19 14 13 15 23
Other 1 1 0 0 1 1 0 2 1 0 1 1 2 1 3 0 0 1 0 1 0 1 1