|
Transparent information about WHO will benefit from the data access
|
61
|
74
|
68
|
58
|
69
|
63
|
32
|
75
|
59
|
57
|
61
|
66
|
55
|
68
|
61
|
63
|
73
|
47
|
68
|
66
|
70
|
67
|
62
|
|
The option to withdraw your information in the future
|
54
|
58
|
67
|
56
|
50
|
62
|
39
|
31
|
57
|
50
|
46
|
48
|
55
|
60
|
51
|
58
|
59
|
49
|
58
|
53
|
62
|
61
|
51
|
|
Knowing exactly who is using your information, and for what purpose
|
53
|
56
|
61
|
61
|
52
|
56
|
46
|
45
|
53
|
63
|
40
|
45
|
56
|
57
|
47
|
52
|
60
|
62
|
52
|
53
|
63
|
53
|
45
|
|
Transparent information about HOW others will benefit personally, professionally and commercially from the data access
|
49
|
57
|
62
|
35
|
51
|
54
|
38
|
52
|
41
|
37
|
56
|
52
|
42
|
59
|
45
|
41
|
61
|
36
|
55
|
54
|
42
|
55
|
53
|
|
The option to opt out of having your information accessed by other researchers
|
45
|
33
|
60
|
44
|
45
|
54
|
51
|
34
|
45
|
30
|
42
|
34
|
37
|
38
|
44
|
52
|
51
|
37
|
37
|
25
|
49
|
53
|
44
|
|
Details about the sanctions applicable if my data is misused by others
|
40
|
48
|
49
|
37
|
36
|
42
|
28
|
44
|
36
|
43
|
5
|
29
|
58
|
45
|
22
|
38
|
49
|
50
|
37
|
36
|
42
|
41
|
29
|
|
The ability to access your own DNA and/or medical information
|
38
|
40
|
53
|
51
|
24
|
47
|
31
|
28
|
43
|
37
|
27
|
30
|
28
|
46
|
27
|
45
|
43
|
52
|
40
|
43
|
48
|
42
|
41
|
|
A website that clearly explains the pros and cons of data access
|
37
|
38
|
49
|
32
|
35
|
40
|
38
|
38
|
28
|
29
|
56
|
29
|
36
|
35
|
42
|
31
|
27
|
28
|
29
|
30
|
33
|
46
|
49
|
|
Being able to communicate directly with gatekeepers of my DNA and/or medical information
|
27
|
30
|
37
|
29
|
30
|
32
|
24
|
32
|
28
|
28
|
13
|
16
|
17
|
30
|
29
|
28
|
35
|
36
|
29
|
22
|
28
|
29
|
26
|
|
Biographies and photos of the sorts of researchers who would access the data
|
21
|
21
|
17
|
14
|
21
|
20
|
34
|
28
|
19
|
15
|
31
|
13
|
24
|
28
|
23
|
17
|
16
|
20
|
19
|
14
|
13
|
15
|
23
|
|
Other
|
1
|
1
|
0
|
0
|
1
|
1
|
0
|
2
|
1
|
0
|
1
|
1
|
2
|
1
|
3
|
0
|
0
|
1
|
0
|
1
|
0
|
1
|
1
|
