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Table 1 Scientific, cultural, and social factors to consider in tailoring consent for genomic research

From: Tailoring the process of informed consent in genetic and genomic research

1 Study design (for example, disease versus non-disease studies; selected genes versus whole genome)
2 Data and biological sample sharing requirements
3 Reporting study findings to participants
4 Cultural context of the study
5 Participant language and literacy
6 Participant knowledge of differences between research and clinical care
7 Potential for stigmatization of the study population
8 Inclusion of indigenous populations
9 Strength of economic, scientific and health infra-structures at study sites
10 Regulatory oversight