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Table 2 Discussion of the decision with others and intentions at T3, and actual decisions made subsequently

From: Informed decision-making among students analyzing their personal genomes on a whole genome sequencing course: a longitudinal cohort study

N = 19   N(%)
Discussion of decision with others, self-reported at T3  
Have you discussed whether or not to get your genome sequenced as part of this course with anyone? Yes 17 (89.5%)
No 2 (10.5%)
Who have you talked to about whether or not to get your genome sequenced as part of this course? Genetic counselor 2 (10.5%)
Other health professional 2 (10.5%)
Mother 8 (42.1%)
Father 7 (36.8%)
Brother/sister 3 (15.8%)
Other family member 3 (15.8%)
Friend(s) 12 (63.2%)
Spouse/significant other 10 (52.6%)
One or more of the course directors 1 (5.3%)
Other (if other, please specify)a 1 (5.3%)
Intentions, self-reported at T3  
I intend to have the blood draw for WGS as part of this course No, definitely not 0 (0%)
No, probably not 0 (0%)
Don’t know/it depends 0 (0%)
Yes, probably 6 (31.6%)
Yes, definitely 13 (68.4%)
Median Yes, definitely
I intend to analyze my own genome as part of this WGS course No, definitely not 0 (0%)
No, probably not 0 (0%)
Don’t know/it depends 0 (0%)
Yes, probably 6 (31.6%)
Yes, definitely 13 (68.4%)
Median Yes, definitely
I intend to seek genetic counseling before making my decision about whether to obtain my own personal genome sequence data No, definitely not 5 (26.3%)
No, probably not 7 (36.8%)
Don’t know/it depends 0 (0%)
Yes, probably 2 (10.5%)
Yes, definitely 5 (26.3%)
Median No, probably not
Observed actual behaviors, after T3  
Did the student actually have their blood drawn and analyze their own genome as part of the WGS course?  
Yes 19 (100%)
Did the student see the genetic counselor provided within the medical school prior to receiving their WGS data?  
Yes 2 (10.5%)
Did the student see the genetic counselor provided outside of the medical school prior to receiving their WGS data?  
Yes 0 (0%)
  1. aThe ‘other’ response here was: ‘Just mentioned it not looking for an answer because there is actually no question here. I will meet with a genetic counselor though just to learn about the experience’.