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Table 1 Living participants by re-contact status and consent

From: Re-contacting participants for inclusion in the database of Genotypes and Phenotypes (dbGaP): Findings from three case-control studies of lung cancer

  Contacteda(n = 1,820) Status of consentb(n = 871)
  Yes No p-value Given Refused p-value
Study    <0.0001    0.76
  FHS 138 (48.6%) 146 (51.4%)   98 (90.7%) 10 (9.3%)  
  WELD 551 (73.3%) 201 (26.7%)   423 (88.7%) 54 (11.3%)  
  INHALE 456 (58.2%) 328 (41.8%)   252 (88.1%) 34 (11.9%)  
Sex    <0.0001    0.05
  Male 238 (48.5%) 253 (51.5%)   122 (84.1%) 23 (15.9%)  
  Female 907 (68.3%) 422 (31.7%)   651 (89.7%) 75 (10.3%)  
Age (years)    <0.0001    0.07
  <49 229 (51.0%) 220 (49.0%)   163 (92.6%) 13 (7.4%)  
  50+ 916 (66.8%) 455 (33.2%)   610 (87.8%) 85 (12.2%)  
Race    <0.0001    0.43
  White 578 (72.2%) 223 (27.8%)   448 (89.8%) 51 (10.2%)  
  Black 550 (55.6%) 439 (44.4%)   312 (87.2%) 46 (12.9%)  
  Other 17 (56.7%) 13 (43.3%)   13 (92.9%) 1 (7.1%)  
Status    0.0009    0.48
  Case 362 (68.8%) 164 (31.2%)   248 (89.9%) 28 (10.1%)  
  Control 783 (60.5%) 511 (39.5%)   525 (88.2%) 70 (11.8%)  
  1. aExcludes 13 people for whom contact status was unclear/still pending.
  2. bExcludes 274 people who were successfully contacted and verbally agreed but never sent back the form (n = 252), individuals who were contacted but too sick to give informed consent (n = 30), and n = 2 individuals who were deceased but had next of kin return a consent form.