Table 1 Optional BASIC3 study events listed in patient and parent consent forms
Participant | Study event |
|---|---|
Patient | Inclusion of carrier status results in germline exome report |
Patient | Use of diagnostic tumor sample for additional genomic research |
Patient | Use of blood sample for additional genomic research |
Patient | Use of future tumor samples for additional genomic research |
Patient | Release of blood/tumor samples and genetic/clinical information to other researchers |
Patient | Release of genetic and clinical information into scientific databases |
Parent | Use of blood sample for additional genomic research |
Parent | Release of blood sample and genetic/clinical information to other researchers |
Parent | Release of genetic/clinical information into scientific databases |
Both | Permission for future re-contact |