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Table 1 Optional BASIC3 study events listed in patient and parent consent forms

From: Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients

Participant Study event
Patient Inclusion of carrier status results in germline exome report
Patient Use of diagnostic tumor sample for additional genomic research
Patient Use of blood sample for additional genomic research
Patient Use of future tumor samples for additional genomic research
Patient Release of blood/tumor samples and genetic/clinical information to other researchers
Patient Release of genetic and clinical information into scientific databases
Parent Use of blood sample for additional genomic research
Parent Release of blood sample and genetic/clinical information to other researchers
Parent Release of genetic/clinical information into scientific databases
Both Permission for future re-contact
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Genome Medicine

ISSN: 1756-994X

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