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Erratum to: Making sense of big data in health research: towards an EU action plan

  • Charles Auffray1, 2Email author,
  • Rudi Balling3Email author,
  • Inês Barroso4,
  • László Bencze5,
  • Mikael Benson6,
  • Jay Bergeron7,
  • Enrique Bernal-Delgado8,
  • Niklas Blomberg9,
  • Christoph Bock10, 11, 12,
  • Ana Conesa13, 14,
  • Susanna Del Signore15,
  • Christophe Delogne16,
  • Peter Devilee17,
  • Alberto Di Meglio18,
  • Marinus Eijkemans19,
  • Paul Flicek20,
  • Norbert Graf21,
  • Vera Grimm22,
  • Henk-Jan Guchelaar23,
  • Yi-Ke Guo24,
  • Ivo Glynne Gut25,
  • Allan Hanbury26,
  • Shahid Hanif27,
  • Ralf-Dieter Hilgers28,
  • Ángel Honrado29,
  • D. Rod Hose30,
  • Jeanine Houwing-Duistermaat31,
  • Tim Hubbard32, 33,
  • Sophie Helen Janacek20,
  • Haralampos Karanikas34,
  • Tim Kievits35,
  • Manfred Kohler36,
  • Andreas Kremer37,
  • Jerry Lanfear38,
  • Thomas Lengauer12,
  • Edith Maes39,
  • Theo Meert40,
  • Werner Müller41,
  • Dörthe Nickel42,
  • Peter Oledzki43,
  • Bertrand Pedersen44,
  • Milan Petkovic45,
  • Konstantinos Pliakos46,
  • Magnus Rattray41,
  • Josep Redón i Màs47,
  • Reinhard Schneider3,
  • Thierry Sengstag48,
  • Xavier Serra-Picamal49,
  • Wouter Spek50,
  • Lea A. I. Vaas36,
  • Okker van Batenburg50,
  • Marc Vandelaer51,
  • Peter Varnai52,
  • Pablo Villoslada53,
  • Juan Antonio Vizcaíno20,
  • John Peter Mary Wubbe54 and
  • Gianluigi Zanetti55, 56
Genome Medicine20168:118

Received: 26 October 2016

Accepted: 26 October 2016

Published: 7 November 2016

The original article was published in Genome Medicine 2016 8:71


The published article [1] has two points of confusion in the section entitled “Technical challenges related to the management of electronic health records”. Firstly, the International Rare Diseases Research Consortium (IRDiRC) has developed policies and guidelines on approaches to data sharing meant to enable and improve the development of diagnoses and therapies for rare diseases. However, at present, IRDiRC has not developed best practices for the management of electronic health records (EHRs). Secondly, RARE-Bestpractices is a European Commission 7th Framework Programme (FP7) funded initiative, independent of IRDiRC. RARE-Bestpractices contributes to IRDiRC goals and objectives; however the initiative itself is not sponsored nor connected to IRDiRC.



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Authors’ Affiliations

European Institute for Systems Biology and Medicine
CIRI-UMR5308, CNRS-ENS-INSERM-UCBL, Université de Lyon
Luxembourg Centre for Systems Biomedicine, University of Luxembourg
Wellcome Trust Sanger Institute
Health Services Management Training Centre, Faculty of Health and Public Services, Semmelweis University
Centre for Personalised Medicine, Linköping University
Translational & Bioinformatics, Pfizer Inc.
Institute for Health Sciences
CeMM Research Center for Molecular Medicine of the Austrian Academy of Sciences
Department of Laboratory Medicine, Medical University of Vienna
Max Planck Institute for Informatics
Príncipe Felipe Research Center
University of Florida, Institute of Food and Agricultural Sciences (IFAS)
Bluecompanion Ltd
Technology, Data & Analytics, KPMG Luxembourg, Société Coopérative
Department of Human Genetics, Department of Pathology, Leiden University Medical Centre
Information Technology Department, European Organization for Nuclear Research (CERN)
Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht
European Molecular Biology Laboratory, European Bioinformatics Institute (EMBL-EBI)
Department of Pediatric Oncology/Hematology, Saarland University
Project Management Jülich, Forschungszentrum Jülich GmbH
Department of Clinical Pharmacy & Toxicology, Leiden University Medical Center
Data Science Institute, Imperial College London
CNAG-CRG, Center for Genomic Regulation, Barcelona Institute for Science and Technology (BIST)
Institute of Software Technology and Interactive Systems, TU Wien
The Association of the British Pharmaceutical Industry
Department of Medical Statistics, RWTH-Aachen University, Universitätsklinikum Aachen
SYNAPSE Research Management Partners
Department of Infection, Immunity and Cardiovascular Disease and Insigneo Institute for In-Silico Medicine, Medical School, University of Sheffield
Department of Statistics, School of Mathematics, University of Leeds
Department of Medical & Molecular Genetics
Genomics England
National and Kapodistrian University of Athens, Medical School
Vitromics Healthcare Holding B.V.
Fraunhofer Institute for Molecular Biology and Applied Ecology ScreeningPort
Research Business Technology
Health Economics & Outcomes Research
Janssen Pharmaceutica N.V., R&D G3O
Faculty of Life Sciences, University of Manchester
UMR3664 IC/CNRS, Institut Curie, Section Recherche, Pavillon Pasteur
Linguamatics Ltd
PwC Luxembourg
Department of Public Health and Primary Care, KU Leuven Kulak
INCLIVA Health Research Institute, University of Valencia, CIBERobn ISCIII
Swiss Institute of Bioinformatics (SIB) and University of Basel
Agency for Health Quality and Assessment of Catalonia (AQuAS)
EuroBioForum Foundation
Integrated BioBank of Luxembourg
Technopolis Group
Hospital Clinic of Barcelona, Institute d’Investigacions Biomediques August Pi Sunyer (IDIBAPS)
European Platform for Patients’ Organisations, Science and Industry (Epposi)


  1. Auffray C, Balling R, Barroso I, Bencze L, Benson M, Bergeron J, et al. Making sense of big data in health research: Towards an EU action plan. Genome Med. 2016;8:71.View ArticlePubMedPubMed CentralGoogle Scholar


© The Author(s). 2016